Day 27 & 28: Wrestling With Pain

Warning: ***The following is a bit graphic, so if you are an enormous babychild you may want to skip this first part.***

Several years ago, after having my second daughter, I had excruciating pain on the right side of my abdomen. I could feel a relatively large mass just below my rib cage and it was not only strange and worrisome, but it seemed to be the source of my discomfort. The pain wasn't constant, but when present, it was often unbearable. At one point, after a long car ride, I was in so much pain I started feeling quite dizzy and nauseated. When Tom finally pulled into the driveway I was so eager to get out of the car that I immediately opened the door the moment the car stopped moving. It was too late though. As soon as my door opened I passed out onto the driveway. I still remember "coming to" and Tom saying, "I don't know what happened, I put the van in park and looked over and you were gone!." It was all very mysterious and a touch dramatic. 

To my frustration, my doctor couldn't find anything abnormal. The ultrasound and CT scan results were totally normal. No mass. Nothing inside me that was out of the ordinary. I was asked a lot of questions that made me feel that doctors believed that these might be psychosomatic symptoms, or postpartum depression. Still, the pain persisted. In waves. It was sometimes there as a dull ache, and sometimes it was sharp and acute. Desperate for answers, I started paying very close attention to the pain. What positions caused me the most pain? What actions or movements were more comfortable, or less. Was my body reacting to something that I wasn't paying attention to? When was the mass there (sometimes visible!) and when was it gone? I would make Tom feel the mass when it was there so he didn't think I was crazy. This went on for close to two years. 

In this process I determined that sitting for any amount of time was the most painful. I went to yet another doctor with my observations and she listened to me and got creative. She did an ultrasound, but instead of just lying there on my back, she had me lay on each side. She had me sit up, she did an ultrasound on my abdomen while standing up and contorting myself in all different directions. 

And ya know what, she found it. Wanna know what that mass was? It was my kidney. Except it was floating around my body instead of staying up where it belongs. When I was laying down it would swim up where it belonged and was, therefore undetectable during a CT or typical ultrasound. She sent me for a kidney function test, and also a sitting and a standing CT and the images were clear - my right kidney was dangling below the protection of my rib cage. When I was sitting, my rib cage would jam into my kidney, restricting blood flow and causing a great deal of pain. My right kidney was functioning at just under 20%. The official diagnosis was Nephroptosis or floating kidney.

I ended up having a surgery called a nephropexy - where they litterally stitched my kidney up to my back muscles. To this day it feels super weird to run or jump on a trampoline or do handstands and cartwheels. Not just because I am 36 or 37 and am probably too old to be participating in these shenanigans, but because I can actually feel my kidney tugging on my back muscles. No matter how much time passes, no matter how much I choose to live an exuberant life, I can always feel the pain tugging inside me.

That is grief. 

I have always lived an exuberant life. I am loud and spazzy and embarrassing. I bust out handstands and loudly sing (incorrect) lyrics in my unfortunate singing voice. When I make people laugh it's like a power-up on a video game for me. Laughter makes me louder and spazzier and more embarrassing. I am like a toddler up past their bedtime. I am not unhappy. I am full of life and I have so much joy and am able to dance with such reckless abandon that it might be my spiritual gift. 

Still. No matter how much time passes, no matter how much I choose to live an exuberant, full life... I can always feel the pain of grief tugging inside me. It doesn't stop me from doing cartwheels. But it's always there.

For Day 27 we were supposed to have Frank over for dinner and a cake presentation. If you don't know who or what I am talking about, you might want to watch this video:

We ordered the cake and I have to give a shout out to my friend and neighbor Maggie for understanding how computers work and for using one to create the bird and milk carton graphic that we put on the cake. 

Sadly, Frank and his family were not able to come. He was under the weather, so we have to reschedule. :( We were very sad that we couldn't present him with his beautiful baptismal cake, but I don't think he'd mind me telling you that when we connected over the phone for the first time he said how touched he was that Tom remembered him and his kind actions so many years later. We look forward to reconnecting with Frank soon. 

For Day 28, we livestreamed (I don't really know what live streaming is, so I might be using it wrong.) our girls' final cross country race.

It was the county championships and Annalee and Marlie did awesome, both breaking personal race times. We haven't yet received the official results for the whole race, but we do know that Annalee (our 8th grader) came in 6th in the county!

This is my blog, and I reserve the right to shamelessly celebrate for a sec because I am beyond proud of my kid that can run a 5:53 mile (and smokes the boys on a regular basis.) ;) Our family in Michigan and Chicago don't get to see the kids' events so using Facebook Live to make a fool of my spazzy, exuberant self while recording their events is a gift to our family. 

We also bought the girls a county race shirt. These shirts are ill-fitting and over priced and parent confession: the girls usually buy their own merchandise if they really want it. They do not ask us to buy stuff. It's a reflection of who they are, and their perspective and understanding of life with lots of kids in the family. We simply have to say no to the extras. Even though they came prepared to purchase their own shirts, we surprised them by buying them. It sounds like a small thing, but $56 bucks for two long sleeve shirts that are way too wide for my little slim babies is a big deal to us.

Watching some sports impacts me more than others. There is something about wrestling and cross country that makes me wistful. Wrestling - in part - because Adam was such a wrestling phenom and I grew up in the gym watching wrestling meets.

But also because wrestling and long distance running take so much discipline. Both sports take a tenacity and endurance that other sports don't seem to require. Yesterday, I watched my girls push through their pain to run their best race. 

That is grief. That is life really. That no matter how much life we live, no matter how much ground we cover... we cannot outrun our pain. It stays with us, and it requires a tenacity and endurance that many of us have no choice but to develop. The pain is a non-negotiable. Running the race well is the choice. The pain isn't going anywhere, but whether or not we press on, and still laugh and eat cake and do cartwheels... that is the decision we must make. 

Day 1: Life.

I can't believe that it has already been a full year since I told the story about my brother, Adam.  I started with the story of his death, and spent the rest of the month trying to share and honor the story his life.  And here I am again.  Day one.

Below is the original post, because I think it is important to start at the beginning, and because I want all the new readers to understand why I am spending another October choosing to celebrate and honor life, rather than being consumed by death...

In loving memory of my big brother. 

--

I am going to tell you a story.

I haven't done this before, told this story, so detailed and so publicly.  But, I am going to try something big this month, and I think I need to tell this story in order to do it well.  So, here goes nothin...

It was Halloween night many years ago, and my 17 year old brother, Adam H. Provencal, was driving home from the Regional Championship Soccer game.  He was a senior in high school and the captain of the soccer team, and this victory was worth celebrating, and it was news worth spreading for our small Michigan town.

When my brother (and his friend Mike) were driving home and passed some of their friends out playing some harmless Halloween pranks, it was the perfect time to spread the news.  So Adam pulled the car over and was telling his friends about the big victory.  I have no idea what my brother was thinking or feeling in that moment but, my guess, is freedom.  I imagine a boy - crazy about sports, working so hard to maintain his 4.0 GPA in mostly advanced placement classes, editor-in-chief of the nationally recognized school paper, and all-around nice guy - and the pressure that that brings on a kid.  I imagine him in this moment, and the hard work (for now) is done and has paid off with a regional championship.  And he's free.  He is young and free, and he wants to tell to his friends.

So, he pulls over and he and his friends are joking around and talking and hanging out, and they are young and free in this moment.

The whimsical youth of the moment ends when a homeowner comes out and is irate about the pranks and, though my brother had not been involved in them, he had the car and perhaps that made him seem to be the ringleader somehow.  I don't really know if that was why Adam felt the need to go to the door or not, but he did.  He decided he would walk up to the door, to apologize for being there and to offer to clean up the toilet paper in the yard, and he no longer felt young and free.  He was probably terrified that he was going to get in trouble.  So, he dutifully walked up to the man's door and knocked twice.

The man did not open the door and hear him out, he did not yell at Adam to leave, he did not call the police. When my 17 year old brother knocked on the door that night to have a hard conversation, he had a baby face and scrawny limbs and braces in his mouth.  And when Adam knocked twice on that door, the man gave no warning before he pulled the trigger of his shotgun, sending one, single bullet through the small window of his front door.

One bullet.

One bullet changed many lives, some lives even devastated.  But only one life was ended.  My only brother, my parents only son, my hero, my friend... the only person strong enough to jump on a trampoline with me on his shoulders, and the boy who led me to Christ, and taught me to dance like M.C. Hammer, and to be funny enough to joke my way out of trouble.  He was gone.

His murderer was in and then out of jail after only two years, for a boy's life taken in a rage over some harmless pranks.

Needless to say, when October rolls around I get stuck.  It is almost like my body involuntarily braces for a trauma.  The crisp fall air, the smell of leaves and bonfires... they are all beautiful reminders of fall, and nightmarish triggers that put my physical and emotional self on high alert, tragedy-ready.

So, here we are, heading into the 31 days of October, and I am 31 years old... outliving my big brother by 14 years.  I need to do something.  I need to be productive and I need to spend these 31 days focusing outwardly, or I will implode with my seasonal misery and depression.  So, I accepted a challenge, a plan designed to get out of my head and focus on other people.  31 days of kindness toward others.

I have no idea what this 31 day challenge is going to teach me.  And I have very little faith in my ability to stick with this.  So, this is me going on public record promising to let these next 31 days not be all about me, and all about memories and sadness and lost life.  Rather, I want to commit myself to honor all the good Adam would have done if his life had not been cut short.  I wanted to be just like him when I grew up.  Well, here is my chance... 31 is pretty grown up, so here goes nothing.

--

For my first act of kindness this year, I created and donated some custom-made hair pieces and costume pieces to a local ballet ministry appropriately named "The Life Ballet," which shares a message of life and healing to millions of men and women who suffer in silence in the aftermath of having chosen to have an abortion.  

The Life Ballet was written and created by Sandy Arena, who shares her personal story of having had two abortions herself, and has since devoted her life to helping women recover from the devastating effects many women experience after having an abortion.  Sandy and her amazing family have poured themselves into a mission that does not judge or condemn women for their choice but, rather, helps them find freedom, forgiveness and healing.

Being able to support Sandy and the dancers in The Life Ballet is kind of a perfect day one, because this month of kindness is about the same thing... finding freedom, forgiveness and healing.